Home - Running For Research ♥ Prader-Willi Syndrome

The 2024 Running For Research Race Registrations Are Now Closed. But you can still donate! Donate

Thank You To Our 2024 Sponsors

Thank You To Our 2024 Sponsors

Running for Research ♥ Prader-Willi Syndrome (RFR) came into being in April of 2018.It was born from a conversation between Kelly Shad Guillou and Dr. Jennifer Miller.Kelly and her daughter Clementine, a child who lives with PWS, were visiting Dr. Millerat the University of Florida for a regular evaluation. Dr. Miller is one of the …

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PWS Awareness: a series of vignettes about raising a child with PWS

Awareness

PWS Awareness: Fact #30

Awareness

PWS Awareness: Fact #29

Awareness

PWS Awareness: Fact #28

Awareness

PWS Awareness: Fact #27

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Research News

News Research

Multiple Clinical Trials Seek New Approach to Treating Prader-Willi Syndrome

Research

Clinical Outcome Assessment tool Partnership

Research

Running for Research racing toward better lives with PWS

Research

THE GUT MICROBIOME OF PWS INDIVIDUALS STUDY RECRUITMENT IS NOW OPEN!!!!!

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We have Merch!

Tank Top (Ladies Cut) – White

$25.50

Team T-Shirt 2022

$23.50

Long Sleeve T-shirt

$26.50

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Pura Vida™ Running For Research Braided Bracelet

$11.50

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