Home - Running For Research ♥ Prader-Willi Syndrome

The 2023 RFR campaign has officially closed. Our fundraising total is an amazing $257,369!!! Read More!

Thank You To Our 2023 Sponsors

Thank You To Our 2023 Sponsors

Thank You To Our 2023 Sponsors

Thank You To Our 2023 Sponsors

Thank You To Our 2023 Sponsors

Thank You To Our 2023 Sponsors

Running for Research ♥ Prader-Willi Syndrome (RFR) came into being in April of 2018.It was born from a conversation between Kelly Shad Guillou and Dr. Jennifer Miller.Kelly and her daughter Clementine, a child who lives with PWS, were visiting Dr. Millerat the University of Florida for a regular evaluation. Dr. Miller is one of the …

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PWS Awareness: a series of vignettes about raising a child with PWS

Awareness

PWS Awareness: Fact #30

Awareness

PWS Awareness: Fact #29

Awareness

PWS Awareness: Fact #28

Awareness

PWS Awareness: Fact #27

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Research News

Research

Clinical Outcome Assessment tool Partnership

Research

Running for Research racing toward better lives with PWS

Research

THE GUT MICROBIOME OF PWS INDIVIDUALS STUDY RECRUITMENT IS NOW OPEN!!!!!

Research

Soleno Therapeutics Press Release

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We have Merch!

Tank Top (Ladies Cut) – White

$25.50

Team T-Shirt 2022

$23.50

Long Sleeve T-shirt

$26.50

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Pura Vida™ Running For Research Braided Bracelet

$11.50

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