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PWS Awareness: Fact #2

Today is the second day of PWS Awareness month. Fact #2: PWS is caused by a lack of active genetic material in a particular region of chromosome 15 (15q11-q13). Normally, individuals inherit one copy of chromosome 15 from their mother and one from their father. The genes in the PWS region are normally only active …


PWS Awareness: Fact #1

May has been designated as Prader-Willi Syndrome Awareness Month. As promised, I will begin my daily posts regarding PWS and what this syndrome has meant for my youngest daughter Clementine and also the rest of our family. FACT #1:Prader Willi Syndrome ( PWS ) is a rare genetic disorder affecting approximately 1 in every 15,000 …