Thank you to everyone who supported us this year. We exceeded our campaign goal by over $100k!

The Clinical Outcome Assessment Project, funded by this year’s fundraising effort, is already underway. Great progress is being made and I’ll share updates as I receive them so that you can see what your donation is accomplishing. Your support is creating real and valuable change for the PWS community and I am forever grateful.

I also want to thank anyone who has supported us in any way over these past 5 years. RFR has funded 5 studies/projects. Two have been completed and the results published, 2 are underway and 1 is in the final planning stages. Again, your support has and will continue to create real and postive impacts for my daughter and all others living with PWS.

The total money raised by RFR in the past 5 years in now in excess of $1,100,00. Ninety five percent of this money has gone directly into the UF PWS Research Fund. I couldn’t be more thrilled!

Thank you again everyone!!!