Showing: 1 - 3 of 3 RESULTS

Great News!!

Carmen Garcia Fernandez, mom to Javi, and one of our spectacular team members/fundraisers, found out last night that she won her employer’s worldwide contest, DHL’s Got Heart. Carmen entered the contest with a goal of raising awareness of PWS and money for RFR. Carmen chose to hold a padel tournament in Madrid , Spain and …


2023 Running for Research Campaign

Thank you to everyone who supported us this year. We exceeded our campaign goal by over $100k! The Clinical Outcome Assessment Project, funded by this year’s fundraising effort, is already underway. Great progress is being made and I’ll share updates as I receive them so that you can see what your donation is accomplishing. Your …