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Great News!!

Carmen Garcia Fernandez, mom to Javi, and one of our spectacular team members/fundraisers, found out last night that she won her employer’s worldwide contest, DHL’s Got Heart. Carmen entered the contest with a goal of raising awareness of PWS and money for RFR. Carmen chose to hold a padel tournament in Madrid , Spain and …


2023 Running for Research Campaign

Thank you to everyone who supported us this year. We exceeded our campaign goal by over $100k! The Clinical Outcome Assessment Project, funded by this year’s fundraising effort, is already underway. Great progress is being made and I’ll share updates as I receive them so that you can see what your donation is accomplishing. Your …


Donation Match!

Thanks to an anonymous donor, RFR has the opportunity to match all donations received between December 21 and December 31st (up to $20,000 total.) This is a great chance to make your donation double in impact! If you have any holiday charitable giving yet to do, please consider making a donation today to RFR. Thank …