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Uncategorized

Today is Gator Nation Giving Day!

TODAY IS GATOR NATION GIVING DAY!! All day today, if you make a donation to RFR/PWS Research Fund, it will be DOUBLED up to $50k!! Please click on the link below, scroll down and select the Prader-Willi Research Fund as your giving choice. https://givingday.ufl.edu/pages/college-of-medicine Everyone please share this opportunity with all of your family and …

Featured Families

Ursinus College

Since my arrival at Ursinus College as the Mens Lacrosse Coach our team has fully embraced our children and made them part of the program.  They welcome them at practices and at all team events as a part of the team. Our children have truly grown to love being a part of Bears family and …

Research

Running For Research raising money for DCCR Study!

From Dr. Miller: “Running for Research – PWS is proud to announce our fundraising study topic for the 2022 campaign. This year, the money raised will fund a multi-center trial of Diazoxide Choline Controlled-Release (DCCR) in patients with Prader-Willi Syndrome who are in Nutritional Phases 1b, 2a, or 2b. This study will be conducted at …

Awareness

PWS Awareness: Fact #30

Having a loved one with PWS will change you for the better. I’ve spent the last 29 days describing PWS and its symptoms and health consequences. I’ve laid out all of the hurdles PWS has placed and will continue to place in front of Clementine and our family. I’ve tried to illustrate the desperate need …